How to Care for a Child with Hydrocephalus in Georgia
Hydrocephalus is a complex condition that can affect many aspects of a child’s daily life. Fortunately, in Georgia, children diagnosed with hydrocephalus may qualify for skilled nursing or caregiver support at home through programs like GAPP (Georgia Pediatric Program). In this guide, we’ll walk you through what hydrocephalus is, what kind of care is typically needed, how to access Medicaid support, and what resources are available to families living with hydrocephalus in Georgia.
What Is Hydrocephalus?
Hydrocephalus is a neurological condition caused by an accumulation of cerebrospinal fluid (CSF) within the brain. This buildup can increase pressure inside the skull, potentially leading to:
Enlarged head in infants
Seizures
Developmental delays
Impaired vision or coordination
Headaches, nausea, or vomiting
Behavioral or cognitive challenges
In children, hydrocephalus is often congenital but may also result from trauma, infections, tumors, or complications from premature birth.
Common Care Needs for Children with Hydrocephalus
Children living with hydrocephalus often require specialized medical support. Some of the most common care needs include:
Shunt management: Monitoring for infection or blockage of a VP shunt.
Seizure observation and response.
Feeding support, including oral or tube feeding.
Mobility and developmental assistance.
Supervision for behavioral or sensory issues.
Skilled Nursing vs. Caregiver Support
Depending on your child’s needs, families may qualify for either:
Skilled Nursing (RN or LPN)
Clinical oversight for shunt-related complications or seizure disorders
Medication administration and G-tube or trach care
Training and monitoring for medically complex conditions
Personal Support Caregiver
Daily assistance with bathing, feeding, mobility, and hygiene
Supervision and routine care for children who do not require clinical tasks
May include a parent or family member who qualifies as a caregiver
How GAPP Can Help Children with Hydrocephalus
The Georgia Pediatric Program (GAPP) provides free in-home care to children under 21 with significant medical needs. Children with hydrocephalus may qualify if:
They are Medicaid eligible
They have ongoing care needs due to their condition
Their physician certifies need through a PPOT (Physician's Plan of Treatment) form
GAPP allows families to receive care at home rather than in a facility, improving the child’s quality of life and easing the burden on caregivers.
How to Apply for GAPP
Contact a home care agency (like Miralta) to begin the process.
The agency will help your doctor submit required paperwork (including PPOT).
A review team will determine the number of authorized care hours based on your child’s needs.
If approved, your child will begin receiving either nursing or caregiver support, depending on their care level.
Events and Resources for Families of Children with Hydrocephalus
Finding support is crucial for families caring for a medically complex child. Fortunately, Georgia has several organizations and events tailored to hydrocephalus families:
🎗 Hydrocephalus Association (HA)
National organization offering resources, webinars, toolkits, and local events.
Annual Walk to End Hydrocephalus often includes a Georgia event.
Website: www.hydroassoc.org
👨👩👧👦 Parent-to-Parent of Georgia
Connects parents of children with disabilities, including hydrocephalus.
Offers training, mentorship, and help with IEPs, Medicaid waivers, and care navigation.
🏕 Camp Twin Lakes & Other Inclusive Camps
Provides adaptive summer camp experiences for medically fragile children, including those with hydrocephalus.
Staff are trained in nursing support and managing medical devices like VP shunts.
🏥 Children’s Healthcare of Atlanta (CHOA)
Offers ongoing care, neurology, neurosurgery, and rehabilitation services.
Families can also find social work support and care coordinators.
💬 Online Support Communities
Facebook groups like “Georgia Parents of Children with Disabilities” or “Hydrocephalus Support Network” offer peer advice and encouragement.
Final Thoughts
Hydrocephalus presents real challenges, but you are not alone. Between skilled care at home through GAPP and the supportive community of parents and providers, your child can receive the care they deserve in a loving and safe environment.
Need help getting started with GAPP? Miralta Home Care offers free help to walk you through every step, from eligibility to approval and beyond.
